图书简介

Section I Setting the Stage; Chapter 1 The Language of Pediatric Palliative Care; Joanne Wolfe, Pamela S. Hinds, and Barbara M. Sourkes; Chapter 2 The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US: An Evidence Base Emerges; Bryan Sisk, Kimberley Widger, and Chris Feudtner; Chapter 3 Children’s Voices: The Experience of Patients and Their Siblings; Anna C. Muriel, Abby R. Rosenberg, Barbara M. Sourkes; Chapter 4 Settings of Care; Moshe Cohn, Emily Johnston, and Julia McBee; Chapter 5 Cultural Humility, Social Determinants, and Disparities in Pediatric Palliative Care; Danielle Jonas, Alexis Morvant, and Sara Munoz-Blanco; Chapter 6 Program Development; Tammy I. Kang, Daniel P. Mahoney, Meaghann S. Weaver, and Stacy S. Remke; Chapter 7 Interdisciplinary Education and Training; Katharine E. Brock, Jennifer Hwang, Marsha Joselow, Blyth Lord, Janet Duncan, and Deborah A. Lafond; Chapter 8 Quality in Pediatric Palliative Care; Conrad Williams IV, Amanda L. Thompson, and Kathie Kobler; Section II Relationships and Communication; Chapter 9 Relationships with Children and Ensuring Their Voices in Decision-Making; Karen Ron-Li Liaw, Becky Lois, Julia McBee, and Erin Collins; Chapter 10 Family Experience and Relationships; Kim Mooney-Doyle, Meghan L. Marsac, Elissa G. Miller, Janet A. Deatrick, and Melissa A. Alderfer; Chapter 11 Team Relationships; Michelle R. Brown, Jody Chrastek, and Kris Catrine; Chapter 12 Witness to Suffering: The Clinician Experience; Barbara M. Sourkes, Stephen Liben, and Danai Papadatou; Chapter 13 Practical Aspects of Palliative Care Communication; Lindsay Ragsdale, Tessie October, and Caitlin Scanlon; Chapter 14 Advance Care Planning Along the Care Continuum; Jonathan Mullin, Rachael Burgess, and Justin Baker; Chapter 15 Anticipatory Grief and Bereavement; Jennifer M. Snaman, Terrah Foster Akard, Sue E. Morris, and Lori Wiener; Chapter 16 Resolving Conflicts in Pediatric Palliative Care; Robert Macauley, Jody Chrastek, Amie Brandtjen, Harvey Cohen, and Thaddeus M. Pope; Section III Easing Suffering; Chapter 17 Psychological Symptoms; Chase Samsel, Kathleen Perko, Lori Wiener, and Maryland Pao; Chapter 18 Existential Distress and Suffering; Elisha Waldman and Mark Bartel; Chapter 19 Neurological Symptoms; Shih-Ning Liaw, Jenna E. Freitas, and Julie Hauer; Chapter 20 Pediatric Delirium in the Palliative Care Setting; Paula Tran, Jeffrey Moss, Eunice Koh, Katherine Ort, Richard J. Shaw, and Michelle Goldsmith; Chapter 21 Fatigue; Christina Ullrich, Shana Jacobs, and Pamela S. Hinds; Chapter 22 Sleep and Circadian Rhythms; Toluwalase A. Ajayi, Eric S. Zhou, and Valerie E. Rogers; Chapter 23 Prevention and Treatment of Pain in Children with Serious Illness; Stefan J. Friedrichsdorf, Lauren Heathcote, Michael Sangster, Donna Eull, and Amber Borucki; Chapter 24 Respiratory Symptoms; Rose Sharpe, Megan Jordan, Raymond Barfield, Sarah Gall, Margarita Bidegain, Kristen Lakis, Renee Bartle, and Emily Layok; Chapter 25 Gastrointestinal Symptoms; Kevin Madden and Margaret M. Mahon; Chapter 26 Dermatologic Conditions and Symptom Control; Kimberly A. Bower, Julie Good, Anke Reineke, Cristina Gordon, and Michele R. Burdette-Taylor; Chapter 27 Easing Distress When Death Is Near; Debra Lotstein and Rachel Rusch; Section IV Illness and Treatment Experience; Chapter 28 Prenatal and Neonatal Palliative Care; Christy Cummings, Anne Sullivan, Lauren Cramer, and Renee Boss; Chapter 29 Children with Complex Chronic Conditions; Jori Bogetz, Christopher A. Collura, and Christy Torkildson; Chapter 30 Advanced Heart Disease; Melissa K. Cousino, Chelsea Heneghan, and Elizabeth D. Blume; Chapter 31 Cystic Fibrosis and Other Childhood Lung Diseases; Elisabeth Potts Dellon, Jessica Goggin, and Elliot Rabinowitz; Chapter 32 Solid Organ Transplant; Timothy Klouda, Debra Boyer, Lynne Helfand, Michael McCown, Nicholas Purol, and Dawn Freiberger; Chapter 33 Oncological Illnesses; Sarah McCarthy, Kimberly A. Pyke-Grimm, and Angela M. Feraco; Chapter 34 Hematologic Symptoms; Barbara Speller-Brown, Jillian Campbell, Allistair Abraham, Priyal Patel, Lisa Humphrey, and Jennifer Webb; Chapter 35 Primary and Acquired Immune Deficiency Disorders; Wei Li Adeline Koay, Natella Rakhmanina, Megan Wilkins, Sarah Matthews, and Ami Doshi

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