图书简介
In place of living wills, which have fundamentally misunderstood the problems people face during life-threatening illness, researcher and practicing ICU physician Samuel Morris Brown advocates a system of individualized guidance alongside fundamental reform.
Table of Contents; Acknowledgments; Introduction; SECTION ONE: PAST; Chapter 1. A Culture in Crisis; Historical Death Culture and the Dying of Death; Life Support and the Miracles of Resuscitation; The Rise of Intensive Care and Life Support; Life in the 1960s; Chapter 2. The Rise of the Living Will; The Findings of the Court; Legislation; Disclosurism and a Focus on Procedures; Improving enforcement; Futility, Financial Disaster, and Obligations to Society; Expanding horizons; Chapter 3: Empirical and Ethical Problems with Living Wills; Conceptual Problems with Living Wills; Pig Iron under Water: Living Wills Don?t Apply in Real Life; Paradoxical Threats to Autonomy; If I?m ever like that, let me die: Disability Stigma; The Limits of Prediction Make Living Wills Difficult to Use; Problems of race; Living Wills Can Backfire; Empirical evidence that Living Wills Don?t Work; SECTION TWO: PRESENT; Chapter 4. Living Wills Don?t Make Decisions; Human Beings Do; Thinking like a Human Being; What your Brain Doesn?t Know Might Kill You; Affective forecasting and psychological adaptation; Things that Go Bump in the Night; Moral Distress; Moral Hazards; Choosing to See; Chapter 5. The Barbaric Life of the ICU; Barbarism and Brutality; The Experience of the Ventilator; Immobilization; Tubes and more tubes; The Brain under Siege; Terrible Communication; We Don?t Always Know What We Want; Deforming Death in the Rush to Rescue; Chapter 6. Life after the ICU; A Few Visionary Researchers; The Post-Intensive Care Syndrome; Bodies; Muscles; Lungs; Brains; Psyches; Is It All Worth It?; The Tension between Outcomes Research and Advance Directives; SECTION THREE: FUTURE; Chapter 7. Reform: The Current State of the Art; Eliciting Values and Wishes; Registration Drives for Advance Directives in Wisconsin; Multimedia Persuasion; Tailoring Advance Care Planning; Decision Aids; Choice Architecture; The Science of Communication; The Conversation Project; Redesigning the ICU; Chapter 8. Healing the Intensive Care Unit; Let Families In; Fixing Code Status; Hope for the Best, Prepare for the Worst; Wrapping Up; Recognize the Crossroads; Create a Support Community; Create Space for Facilitated Farewells; Change the Framing to Manage Clinicians? Moral Distress; Changing Culture outside Medicine; Not Left Unsaid; Authentic Personalization; A Possible Map: Five Approaches to the ICU; Approach 1: Do Everything; Approach 2: Be Aggressive Only if I Have a Reasonable Chance of Recovery; Approach 3: Only Admit Me to the ICU if I Have an Excellent Chance of Recovery; Approach 4: Don?t Admit Me to the ICU; Approach 5: Don?t Admit Me to a Hospital; Focus Only on My Comfort; Epilogue. What Should We Do in the Meanwhile?
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