图书简介
Informed consent developed as an international principle to protect the welfare of patients and volunteers taking part in medical research. This book examines the inadequacies of consent for contemporary biomedical research, including perspectives from medicine, law, philosophy and sociology.
Oonagh Corrigan, John McMillan and Charles Weijer: Introduction; 1: S‗ren Holm and S‗ren Madsen: Informed consent in medical research - a procedure stretched beyond breaking point?; 2: Paul Miller and Charles Weijer: Beyond consent: the trust-based obligations of physicians to patients in clinical research; 3: Paul Miller and Josephine Johnston: Consent and private liability in clinical research; 4: Clare Snowdon, Diana Elbourne and Jo Garcia: The decision to refuse consent to participation in a clinical trial: does a double standard exist?; 5: Kathleen Liddell: Beyond a rebarbative commitment to consent; 6: Angus Dawson: The normative status of the requirement to gain an informed consent in clinical trials: comprehension, obligations and empirical evidence; 7: Stephen John: Is there an obligation to participate in medical research?; 8: Julian Hughes, Karen Barrass, Joanne Collerton, Erica Haimes, Tom Kirkwood and Lorraine Summerville.: Consent with older people: research as a virtuous relationship; 9: Philip Bielby: Towards supported decision-making in biomedical research with cognitively vulnerable adults; 10: Margaret Ponder, Helen Statham, Nina Hallowell and Martin Richards: Is consent sufficient? - a case study of qualitative research with men with intellectual disabilities; 11: Nina Hallowell: Consent to genetic testing: a family affair?; 12: Michael Burgess and James Tansey: Cultural authority of informed consent: indigenous participation in biobanking and salmon genomics focus groups; Martin Richards and Kathleen Liddell: Conclusion
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